Beijing Butterfly

We’re bringing home a Beijing Butterfly! Our little guy was born with EB and today happens to be the first day of EB awareness week! Epidermolysis Bullosa. Say what?! What the heck is EB? It’s a rare genetic connective tissue disorder that about 1 in 20,000 babies are born with each year. Because EB can cause the skin to be very fragile, like a butterfly wing, children with EB are known as Butterfly children. You can check out the DEBRA foundation if you are interested in learning more about EB. 


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